{"id":3202,"date":"2024-11-07T12:43:21","date_gmt":"2024-11-07T17:43:21","guid":{"rendered":"https:\/\/www.accessforkidscancer.ca\/?post_type=theme-project&p=3202"},"modified":"2025-11-21T12:09:00","modified_gmt":"2025-11-21T17:09:00","slug":"le-programme-national-dintervenants-pivots-en-acces-aux-medicaments-en-oncologie-pediatrique","status":"publish","type":"theme-project","link":"https:\/\/www.accessforkidscancer.ca\/fr\/projects\/le-programme-national-dintervenants-pivots-en-acces-aux-medicaments-en-oncologie-pediatrique\/","title":{"rendered":"Le programme national d\u2019intervenants pivots en acc\u00e8s aux m\u00e9dicaments <\/span> en oncologie p\u00e9diatrique"},"content":{"rendered":"

Au Canada, la plupart des enfants atteints de cancers \u00e0 pronostic d\u00e9favorable n’ont acc\u00e8s aux th\u00e9rapies innovantes susceptibles de les aider qu’en dehors du contexte des essais cliniques conventionnels. Cela est d\u00fb \u00e0 diverses raisons, notamment l\u2019absence d\u2019essais p\u00e9diatriques pr\u00e9liminaires au Canada et une longue l\u2019\u00e9valuation des technologies de la sant\u00e9 qui est requise avant l\u2019autorisation de mise en march\u00e9 des traitements.<\/p>\n

Souvent, les oncologues p\u00e9diatriques doivent s\u2019orienter seuls dans des voies complexes et laborieuses et plaider pour que leurs patients puissent acc\u00e9der aux nouveaux traitements, qui comprennent des programmes d’acc\u00e8s compassionnel de l\u2019industrie ou de la province (pour l\u2019utilisation des m\u00e9dicaments d\u00e9j\u00e0 approuv\u00e9s au Canada pour d\u2019autres indications), les programmes d\u2019acc\u00e8s sp\u00e9cial de Sant\u00e9 Canada (pour les m\u00e9dicaments qui ne sont actuellement approuv\u00e9s pour aucune indication au Canada) ou la mise au point de l\u2019\u00e9tude sur un seul patient de Sant\u00e9 Canada (pour les th\u00e9rapies dont les donn\u00e9es sur la s\u00e9curit\u00e9 p\u00e9diatrique sont limit\u00e9es). Alors que nous continuons d\u2019aborder syst\u00e9matiquement notre capacit\u00e9 \u00e0 trouver de nouveaux traitements gr\u00e2ce \u00e0 l\u2019oncologie de pr\u00e9cision et \u00e0 tenter d\u2019obtenir des traitements fond\u00e9s sur les mol\u00e9cules, nous nous heurtons actuellement \u00e0 un obstacle majeur\u00a0: l\u2019\u00e9cart dans l\u2019acc\u00e8s aux m\u00e9dicaments.<\/p>\n

Le programme national d\u2019intervenants pivots en acc\u00e8s aux m\u00e9dicaments en oncologie p\u00e9diatrique (DAN-PO) a \u00e9t\u00e9 cr\u00e9\u00e9 pour r\u00e9pondre au besoin d\u2019aide pour les oncologues p\u00e9diatriques au Canada afin qu\u2019ils puissent acc\u00e9der \u00e0 des pharmacoth\u00e9rapies innovantes pour les patients atteints de cancers difficiles \u00e0 traiter. . Le r\u00f4le a \u00e9t\u00e9 soutenu par le programme PRecision Oncology For Young people (PROFYLE) gr\u00e2ce au financement de l\u2019Institut de recherche Terry Fox, de la Team Finn Foundation et du Garron Family Cancer Centre.\u00a0 \u00c0 ce jour, le DAN-PO a soutenu et dirig\u00e9 plusieurs initiatives visant \u00e0 am\u00e9liorer l\u2019acc\u00e8s, y compris l\u2019\u00e9laboration d\u2019une base de donn\u00e9es sur l\u2019acc\u00e8s aux m\u00e9dicaments novateurs, des projets de recherche sur de nouveaux traitements, des essais cliniques et un soutien \u00e0 l\u2019\u00e9laboration de protocoles d\u2019\u00e9tude sur un seul patient, et la promotion de l\u2019acc\u00e8s pour des raisons humanitaires ou d\u2019autres moyens d\u2019acc\u00e8s aux m\u00e9dicaments commerciaux.<\/p>\n

Le travail du DAN-PO est crucial pour la mission d\u2019ACCES, \u00ab\u00a0veiller \u00e0 ce que chaque enfant atteint de cancer au Canada ait acc\u00e8s aux derni\u00e8res avanc\u00e9es scientifiques, aux outils de diagnostic, aux th\u00e9rapies novatrices et aux soins de soutien\u00a0\u00bb. Le soutien d\u2019ACCES au r\u00f4le du DAN-PO permettra l\u2019acc\u00e8s des cliniciens aux m\u00e9dicaments pancanadiens et l\u2019\u00e9laboration, la gestion et le partage d\u2019une base de donn\u00e9es nationale sur l\u2019acc\u00e8s aux m\u00e9dicaments. De plus, le DAN-PO fournira des consultations d\u2019experts aux cliniciens et aux chercheurs qui \u00e9laborent des essais cliniques et des \u00e9tudes sur un seul patient de Sant\u00e9 Canada, et mettra en place une communaut\u00e9 de pratique inclusive pour les efforts entrepris en mati\u00e8re d\u2019\u00e9ducation et de d\u00e9fense des int\u00e9r\u00eats au Canada.<\/p>\n

Partenaires financiers :<\/h4>\n

Team Finn Foundation<\/a> et Garron Family Cancer Centre<\/a>.<\/p>\n","protected":false},"author":6,"featured_media":0,"parent":0,"template":"","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0},"tags":[],"project-category":[124,126],"class_list":["post-3202","theme-project","type-theme-project","status-publish","hentry","project-category-acces-a-des-therapies-innovantes-et-a-des-soins-optimaux","project-category-essais-cliniques"],"acf":[],"yoast_head":"\nLe programme national d\u2019intervenants pivots en acc\u00e8s aux m\u00e9dicaments en oncologie p\u00e9diatrique - Access<\/title>\n<meta name=\"description\" content=\"ACCESS is organized into seven research themes from understanding cancer development to its diagnosis, treatment, and survivorship and two cross-cutting groups to support all thematic areas.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.accessforkidscancer.ca\/fr\/projects\/le-programme-national-dintervenants-pivots-en-acces-aux-medicaments-en-oncologie-pediatrique\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le programme national d\u2019intervenants pivots en acc\u00e8s aux m\u00e9dicaments en oncologie p\u00e9diatrique - 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