{"id":3983,"date":"2025-10-21T14:01:10","date_gmt":"2025-10-21T18:01:10","guid":{"rendered":"https:\/\/www.accessforkidscancer.ca\/?post_type=theme-project&p=3983"},"modified":"2025-11-21T11:00:12","modified_gmt":"2025-11-21T16:00:12","slug":"etude-sur-le-deplacement-vers-le-traitement","status":"publish","type":"theme-project","link":"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/etude-sur-le-deplacement-vers-le-traitement\/","title":{"rendered":"\u00c9tude sur le d\u00e9placement vers le traitement <\/span>"},"content":{"rendered":"

Pour de nombreuses familles devant faire face \u00e0 un cancer infantile, se d\u00e9placer pour un traitement n\u2019est pas seulement une n\u00e9cessit\u00e9 logistique \u2013\u00a0c\u2019est \u00e9galement un d\u00e9fi \u00e9motionnel, physique et financier consid\u00e9rable. M\u00eame les familles vivant en banlieue rapportent \u00eatre d\u00e9pass\u00e9es par les trajets et la circulation. Pour ceux qui doivent parcourir de longues distances, voire traverser plusieurs provinces, les difficult\u00e9s sont encore plus grandes. Elles s\u2019ajoutent au fardeau physique et \u00e9motionnel des soins contre le cancer, \u00e0 l\u2019instabilit\u00e9 financi\u00e8re, \u00e0 la s\u00e9paration d\u2019avec la famille, aux responsabilit\u00e9s domestiques et \u00e0 l\u2019\u00e9puisement caus\u00e9 par les d\u00e9placements fr\u00e9quents. Ces facteurs peuvent avoir des r\u00e9percussions n\u00e9gatives sur le bien-\u00eatre global de l\u2019enfant et de sa famille, ce qui rend essentiel de surmonter ces obstacles pour assurer un acc\u00e8s \u00e9quitable aux soins.<\/p>\n

Un rapport exhaustif du programme Cancer chez les jeunes au Canada (CCJC) a mis en lumi\u00e8re les d\u00e9fis auxquels font face les patients atteints de cancer p\u00e9diatrique et leurs familles. Le rapport a soulign\u00e9 l\u2019importance d\u2019un acc\u00e8s rapide \u00e0 des soins sp\u00e9cialis\u00e9s et la n\u00e9cessit\u00e9 de syst\u00e8mes de soutien pour att\u00e9nuer l\u2019incidence des d\u00e9placements. Cependant, il reste un manque de donn\u00e9es canadiennes qui quantifient les r\u00e9percussions r\u00e9elles des d\u00e9placements sur les patients p\u00e9diatriques et leurs familles. \u00c0 la suite d\u2019une enqu\u00eate men\u00e9e avec succ\u00e8s aupr\u00e8s d\u2019adultes atteints de cancer du sang men\u00e9e par la Soci\u00e9t\u00e9 de leuc\u00e9mie et lymphome du Canada (SLLC) en janvier 2025 \u2014\u00a0avec 487\u00a0participants rapportant de longs trajets, une baisse de revenu et des s\u00e9parations de plusieurs mois avec leur famille\u00a0\u2014 il est devenu \u00e9vident qu\u2019il \u00e9tait n\u00e9cessaire d\u2019examiner les exp\u00e9riences des familles et de quantifier l\u2019impact r\u00e9el des d\u00e9placements pour un traitement dans le contexte du cancer p\u00e9diatrique.<\/p>\n

N\u00e9s d’un objectif ambitieux visant \u00e0 multiplier les traitements dispens\u00e9s au sein des communaut\u00e9s et \u00e0 fournir un soutien holistique pour les traitements n\u00e9cessitant des d\u00e9placements, ACCES, LLSC et d’autres organisations sp\u00e9cialis\u00e9es dans le cancer p\u00e9diatrique se sont associ\u00e9s pour \u00e9laborer et lancer une enqu\u00eate nationale visant \u00e0 \u00e9valuer les impacts physiques, sociaux et financiers des d\u00e9placements li\u00e9s au traitement sur les enfants atteints d’un cancer p\u00e9diatrique et leurs familles, et \u00e0 comparer ces impacts entre les communaut\u00e9s et les zones g\u00e9ographiques. Cette \u00e9tude permettra de g\u00e9n\u00e9rer les donn\u00e9es essentielles n\u00e9cessaires pour :<\/p>\n

    \n
  1. mieux comprendre le v\u00e9ritable fardeau des d\u00e9placements pour la communaut\u00e9 p\u00e9diatrique du cancer au Canada;<\/li>\n
  2. soutenir des recommandations concr\u00e8tes et fond\u00e9es sur les donn\u00e9es pour am\u00e9liorer l\u2019acc\u00e8s aux soins, orienter les efforts de d\u00e9fense des int\u00e9r\u00eats et \u00e9laborer des politiques qui priorisent les familles touch\u00e9es par le cancer infantile \u2013\u00a0peu importe o\u00f9 elles vivent.<\/li>\n<\/ol>\n

    Partenaires financiers :<\/h4>\n

    Soci\u00e9t\u00e9 de leuc\u00e9mie et lymphome du Canada.<\/a><\/p>\n","protected":false},"author":6,"featured_media":0,"parent":0,"template":"","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0},"tags":[],"project-category":[124],"class_list":["post-3983","theme-project","type-theme-project","status-publish","hentry","project-category-acces-a-des-therapies-innovantes-et-a-des-soins-optimaux"],"acf":[],"yoast_head":"\n\u00c9tude sur le d\u00e9placement vers le traitement - Access<\/title>\n<meta name=\"description\" content=\"ACCESS is organized into seven research themes from understanding cancer development to its diagnosis, treatment, and survivorship and two cross-cutting groups to support all thematic areas.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/etude-sur-le-deplacement-vers-le-traitement\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00c9tude sur le d\u00e9placement vers le traitement - 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