{"id":3960,"date":"2025-10-10T09:40:52","date_gmt":"2025-10-10T13:40:52","guid":{"rendered":"https:\/\/www.accessforkidscancer.ca\/?post_type=theme-project&p=3960"},"modified":"2025-10-10T09:43:31","modified_gmt":"2025-10-10T13:43:31","slug":"au-dela-du-classeur-ressources-innovantes-et-integratives-axees-sur-la-famille-pour-faciliter-la-navigation","status":"publish","type":"theme-project","link":"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/au-dela-du-classeur-ressources-innovantes-et-integratives-axees-sur-la-famille-pour-faciliter-la-navigation\/","title":{"rendered":" Au-del\u00e0 du classeur : <\/span> ressources innovantes et int\u00e9gratives ax\u00e9es sur la famille pour faciliter la navigation"},"content":{"rendered":"

Les patients p\u00e9diatriques atteints de cancer et leurs familles ont des besoins de soins complexes et multidimensionnels, qui vont au-del\u00e0 de l\u2019aspect m\u00e9dical. Le cancer p\u00e9diatrique peut avoir un effet profond sur l\u2019\u00e9ducation d\u2019un enfant, ses relations sociales, sa fertilit\u00e9 \u00e0 long terme ainsi que la stabilit\u00e9 financi\u00e8re de sa famille.\u00a0 Cependant, les soins sont souvent fragment\u00e9s, obligeant les patients et leurs familles \u00e0 naviguer dans un syst\u00e8me dispers\u00e9 de sant\u00e9, d\u2019\u00e9ducation et de services sociaux \u00e0 travers plusieurs milieux et syst\u00e8mes.<\/p>\n

Une solution prometteuse pour combler cet \u00e9cart est le soutien de l\u2019orientation des patients \u2013 un cadre con\u00e7u pour faciliter les soins int\u00e9gr\u00e9s pour les patients et leurs familles en les mettant en relation avec des services m\u00e9dicaux, sociaux et communautaires, ainsi qu\u2019en les aidant \u00e0 surmonter les obstacles \u00e0 l\u2019acc\u00e8s. Lorsqu\u2019elle a \u00e9t\u00e9 mise en \u0153uvre correctement dans d\u2019autres populations complexes, l\u2019orientation des patients a am\u00e9lior\u00e9 la coordination des soins et l\u2019acc\u00e8s aux ressources.<\/p>\n

Cependant, peu de renseignements sont disponibles sur les ressources et les programmes existants d\u2019orientation actuellement disponibles au Canada pour les patients p\u00e9diatriques atteints de cancer.\u00a0 Pour combler cette lacune, ce projet vise \u00e0\u00a0:<\/p>\n

    \n
  1. effectuer une analyse environnementale des ressources et des programmes existants d\u2019orientation des patients pour les enfants atteints de cancer et leurs familles au Canada;<\/li>\n
  2. diriger une \u00e9valuation nationale des besoins pour recenser les besoins non combl\u00e9s en mati\u00e8re d\u2019orientation parmi les patients, les familles et les \u00e9quipes de soins de sant\u00e9;<\/li>\n
  3. rassembler les ressources existantes sur l\u2019orientation des patients dans un d\u00e9p\u00f4t centralis\u00e9 destin\u00e9 \u00e0 la communaut\u00e9 du cancer p\u00e9diatrique au Canada;<\/li>\n
  4. \u00e9laborer des ressources nationales d\u2019orientation, guid\u00e9es par l\u2019analyse et l\u2019\u00e9valuation, afin d\u2019am\u00e9liorer l\u2019acc\u00e8s, la coordination et l\u2019int\u00e9gration des soins.<\/li>\n<\/ol>\n

    En comprenant ce qui existe \u2013 et ce qui est encore n\u00e9cessaire, ce projet offrira une base fond\u00e9e sur des donn\u00e9es probantes pour guider le d\u00e9veloppement, la mise en \u0153uvre et la diffusion de solutions d\u2019orientation des patients \u00e0 travers la communaut\u00e9 canadienne du cancer p\u00e9diatrique. Ces travaux aideront \u00e0 r\u00e9duire le fardeau des familles, \u00e0 renforcer l\u2019int\u00e9gration des services et \u00e0 faire en sorte que chaque enfant diagnostiqu\u00e9 avec un cancer ait acc\u00e8s et re\u00e7oive les soins et le soutien optimaux dont il a besoin.<\/p>\n","protected":false},"author":6,"featured_media":0,"parent":0,"template":"","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0},"tags":[],"project-category":[124],"class_list":["post-3960","theme-project","type-theme-project","status-publish","hentry","project-category-acces-a-des-therapies-innovantes-et-a-des-soins-optimaux"],"acf":[],"yoast_head":"\nAu-del\u00e0 du classeur : ressources innovantes et int\u00e9gratives ax\u00e9es sur la famille pour faciliter la navigation - Access<\/title>\n<meta name=\"description\" content=\"ACCESS is organized into seven research themes from understanding cancer development to its diagnosis, treatment, and survivorship and two cross-cutting groups to support all thematic areas.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/au-dela-du-classeur-ressources-innovantes-et-integratives-axees-sur-la-famille-pour-faciliter-la-navigation\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Au-del\u00e0 du classeur : ressources innovantes et int\u00e9gratives ax\u00e9es sur la famille pour faciliter la navigation - 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