{"id":3958,"date":"2025-10-07T15:42:31","date_gmt":"2025-10-07T19:42:31","guid":{"rendered":"https:\/\/www.accessforkidscancer.ca\/?post_type=theme-project&p=3958"},"modified":"2025-10-15T14:34:27","modified_gmt":"2025-10-15T18:34:27","slug":"elaboration-dun-cadre-pour-la-collecte-et-lutilisation-de-donnees-sociodemographiques-potentiellement-sensibles","status":"publish","type":"theme-project","link":"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/elaboration-dun-cadre-pour-la-collecte-et-lutilisation-de-donnees-sociodemographiques-potentiellement-sensibles\/","title":{"rendered":"\u00c9laboration d\u2019un cadre pour la collecte et l\u2019utilisation de donn\u00e9es sociod\u00e9mographiques potentiellement sensibles <\/span>"},"content":{"rendered":"

Des recherches ont d\u00e9montr\u00e9 que les enfants issus de groupes sociod\u00e9mographiques d\u00e9favoris\u00e9s et marginalis\u00e9s ont des exp\u00e9riences et des r\u00e9sultats moins favorables en cas de cancer.\u00a0 C\u2019est pourquoi ACCES s\u2019engage \u00e0 promouvoir l\u2019\u00e9quit\u00e9 en mati\u00e8re de sant\u00e9 dans tous les aspects de la recherche et des soins li\u00e9s au cancer infantile. Un travail significatif en faveur de l\u2019\u00e9quit\u00e9 commence par la collecte de donn\u00e9es sociod\u00e9mographiques potentiellement sensibles pour documenter les disparit\u00e9s et mettre en place des programmes adapt\u00e9s qui peuvent combler les \u00e9carts en mati\u00e8re de soins, de r\u00e9sultats et d\u2019exp\u00e9riences. Cependant, les enfants et les familles peuvent \u00eatre et ont \u00e9t\u00e9 l\u00e9s\u00e9s par la collecte, l\u2019utilisation, la distribution et l\u2019analyse inappropri\u00e9es de ces informations sensibles. Conscient de cela, le comit\u00e9 de justice sociale, d\u2019indig\u00e9nisation et d\u2019inclusion s\u2019est fait le champion de la collecte, de la gestion et de l\u2019utilisation responsables des donn\u00e9es sociod\u00e9mographiques sensibles dans tous nos travaux et activit\u00e9s au sein d\u2019ACCES en\u00a0:<\/p>\n

    \n
  1. Proc\u00e9dant \u00e0 un examen complet de toutes les propositions de projet soumises \u00e0 ACCES afin de garantir leur conformit\u00e9 avec notre d\u00e9claration d\u2019\u00e9quit\u00e9 d\u2019ACCES<\/a> et les pratiques exemplaires en mati\u00e8re de collecte et d\u2019utilisation des donn\u00e9es sociod\u00e9mographiques sensibles;<\/li>\n
  2. Menant une enqu\u00eate aupr\u00e8s du personnel de recherche clinique dans la communaut\u00e9 du cancer infantile afin de mieux comprendre leur formation ant\u00e9rieure, ainsi que leur aisance et leur capacit\u00e9 \u00e0 recueillir de mani\u00e8re appropri\u00e9e des donn\u00e9es sociod\u00e9mographiques sensibles;<\/li>\n
  3. D\u00e9veloppant des ressources pour la communaut\u00e9 du cancer infantile afin de normaliser le processus et fournir des conseils sur la mani\u00e8re de recueillir ces donn\u00e9es au sein de la communaut\u00e9 canadienne du cancer infantile, notamment le document d\u2019orientation sur la collecte et l\u2019utilisation de donn\u00e9es sociod\u00e9mographiques et\/ou d\u2019autres donn\u00e9es potentiellement sensibles<\/a>;<\/li>\n
  4. Organisant des sessions de formation \u00e0 travers notre r\u00e9seau sur l\u2019\u00e9quit\u00e9 et son application \u00e0 notre travail et \u00e0 nos activit\u00e9s; et<\/li>\n
  5. Collaborant avec les organisations concern\u00e9es afin d\u2019assurer l\u2019harmonisation des formations et des pratiques en mati\u00e8re de collecte de donn\u00e9es sensibles entre les institutions et les groupes collaboratifs.<\/li>\n<\/ol>\n

    Ensemble, ces efforts constituent un cadre fondamental qui renforce la capacit\u00e9 d\u2019ACCES \u00e0 promouvoir une recherche et des soins \u00e9quitables tout en respectant la dignit\u00e9, l\u2019autonomie et la s\u00e9curit\u00e9 des patients et de leurs familles. Les travaux en cours permettront d\u2019\u00e9largir encore les ressources et les formations mises \u00e0 la disposition de la communaut\u00e9 afin de garantir que la collecte et l\u2019utilisation de donn\u00e9es sociod\u00e9mographiques sensibles favorisent, et ne compromettent pas, l\u2019\u00e9quit\u00e9 en mati\u00e8re de sant\u00e9 dans la recherche et les soins sur le cancer infantile.<\/p>\n","protected":false},"author":6,"featured_media":0,"parent":0,"template":"","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0},"tags":[],"project-category":[131],"class_list":["post-3958","theme-project","type-theme-project","status-publish","hentry","project-category-comite-de-justice-sociale-dindigenisation-et-dinclusion"],"acf":[],"yoast_head":"\n\u00c9laboration d\u2019un cadre pour la collecte et l\u2019utilisation de donn\u00e9es sociod\u00e9mographiques potentiellement sensibles - 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