{"id":3813,"date":"2025-07-14T09:52:08","date_gmt":"2025-07-14T13:52:08","guid":{"rendered":"https:\/\/www.accessforkidscancer.ca\/?post_type=theme-project&p=3813"},"modified":"2025-12-12T13:19:46","modified_gmt":"2025-12-12T18:19:46","slug":"prise-de-decision-en-oncologie-pediatrique-une-experience-de-choix-discret-entre-les-fournisseurs-et-les-patients-chercheurs-principaux","status":"publish","type":"theme-project","link":"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/prise-de-decision-en-oncologie-pediatrique-une-experience-de-choix-discret-entre-les-fournisseurs-et-les-patients-chercheurs-principaux\/","title":{"rendered":" Prise de d\u00e9cision en oncologie p\u00e9diatrique : <\/span> une exp\u00e9rience de choix discret entre les fournisseurs et les patients"},"content":{"rendered":"

L\u2019oncologie p\u00e9diatrique de pr\u00e9cision offre un potentiel de transformation pour les enfants, les adolescents et les jeunes adultes atteints de cancers difficiles \u00e0 gu\u00e9rir en adaptant les traitements en fonction de la biologie de chaque tumeur. Cependant, la prise de d\u00e9cision dans ce contexte complexe reste mal comprise. \u00c9tant donn\u00e9 que les options de traitement peuvent \u00e9voluer rapidement et que les donn\u00e9es probantes sont souvent limit\u00e9es dans les contextes p\u00e9diatriques, les recommandations que les cliniciens ont re\u00e7ues des comit\u00e9s des tumeurs (CT) bas\u00e9es sur le profilage mol\u00e9culaire des tumeurs peuvent \u00eatre complexes, tandis que les patients et les familles peuvent avoir de la difficult\u00e9 \u00e0 interpr\u00e9ter et \u00e0 \u00e9valuer ces recommandations.<\/p>\n

De plus, la prise de d\u00e9cision partag\u00e9e entre les cliniciens et les patients peut entra\u00eener de meilleurs r\u00e9sultats, les pr\u00e9f\u00e9rences entre les patients et les cliniciens peuvent diverger, ce qui entra\u00eene des incoh\u00e9rences dans la mise en \u0153uvre du traitement. Par cons\u00e9quent, des occasions d\u2019am\u00e9liorer les r\u00e9sultats peuvent \u00eatre manqu\u00e9es en raison de lacunes en mati\u00e8re de communication, de besoins d\u2019information non satisfaits ou d\u2019obstacles au niveau du syst\u00e8me. Il existe actuellement peu de donn\u00e9es probantes d\u00e9crivant les facteurs les plus importants pour les oncologues p\u00e9diatriques, les patients et les soignants lorsqu\u2019ils prennent des d\u00e9cisions en oncologie de pr\u00e9cision, ce qui limite la capacit\u00e9 de concevoir des programmes et des politiques v\u00e9ritablement centr\u00e9s sur le patient.<\/p>\n

Ce projet national vise \u00e0 identifier et \u00e0 quantifier les principaux facteurs influen\u00e7ant la prise de d\u00e9cision en oncologie p\u00e9diatrique de pr\u00e9cision en utilisant une exp\u00e9rience de choix discrets \u2014 une m\u00e9thode valid\u00e9e qui permet de r\u00e9v\u00e9ler les pr\u00e9f\u00e9rences des parties prenantes en leur pr\u00e9sentant des sc\u00e9narios hypoth\u00e9tiques et en leur demandant de faire des choix comportant des compromis. Gr\u00e2ce \u00e0 cette approche, nous saisirons les valeurs et les priorit\u00e9s des oncologues p\u00e9diatriques, des patients et des soignants, en particulier dans le contexte de l\u2019interpr\u00e9tation et de la mise en \u0153uvre des recommandations.<\/p>\n

En comprenant quels attributs (par exemple, la solidit\u00e9 des donn\u00e9es probantes, les effets secondaires attendus, la probabilit\u00e9 de b\u00e9n\u00e9fice, les valeurs du patient) influencent le plus les d\u00e9cisions th\u00e9rapeutiques, le projet contribuera \u00e0 l\u2019\u00e9laboration de cadres de prise de d\u00e9cision partag\u00e9e plus efficaces. Il permettra \u00e9galement de cerner les obstacles \u00e0 la mise en \u0153uvre des recommandations du comit\u00e9 des tumeurs, tels que les enjeux syst\u00e9miques, les lacunes en communication ou les divergences d\u2019attentes entre les patients et les professionnels de la sant\u00e9.<\/p>\n

Conform\u00e9ment \u00e0 la mission d\u2019ACCESS, ce projet vise \u00e0 garantir que tous les patients atteints de cancer, qu\u2019ils soient enfants, adolescents ou jeunes adultes (CAYA) \u2014 quel que soit leur milieu ou leur lieu de r\u00e9sidence \u2014 aient acc\u00e8s \u00e0 des processus de prise de d\u00e9cision en oncologie de pr\u00e9cision qui refl\u00e8tent leurs besoins et leurs valeurs. Les r\u00e9sultats seront directement applicables \u00e0 l\u2019\u00e9volution des programmes d\u2019oncologie de pr\u00e9cision au Canada, y compris PRecision Oncology For Young people (PROFYLE),<\/a> et partag\u00e9s avec des r\u00e9seaux d\u2019intervenants plus larges, y compris les personnes ayant une exp\u00e9rience v\u00e9cue (PWLE), afin d\u2019orienter les politiques et les pratiques d\u2019oncologie de pr\u00e9cision \u00e0 l\u2019\u00e9chelle nationale.<\/p>\n

Bien que l\u2019\u00e9tude soit ax\u00e9e sur le Canada, l\u2019\u00e9quipe collabore \u00e9galement avec des chercheurs australiens pour faciliter la compr\u00e9hension des variations dans les diff\u00e9rentes juridictions et g\u00e9n\u00e9rer des connaissances au profit de la communaut\u00e9 internationale des enfants, adolescents et jeunes adultes atteints de cancer.<\/p>\n","protected":false},"author":6,"featured_media":0,"parent":0,"template":"","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0},"tags":[],"project-category":[130],"class_list":["post-3813","theme-project","type-theme-project","status-publish","hentry","project-category-reglementation-politiques-et-economie"],"acf":[],"yoast_head":"\nPrise de d\u00e9cision en oncologie p\u00e9diatrique : une exp\u00e9rience de choix discret entre les fournisseurs et les patients - Access<\/title>\n<meta name=\"description\" content=\"ACCESS is organized into seven research themes from understanding cancer development to its diagnosis, treatment, and survivorship and two cross-cutting groups to support all thematic areas.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/prise-de-decision-en-oncologie-pediatrique-une-experience-de-choix-discret-entre-les-fournisseurs-et-les-patients-chercheurs-principaux\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Prise de d\u00e9cision en oncologie p\u00e9diatrique : une exp\u00e9rience de choix discret entre les fournisseurs et les patients - 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