{"id":3802,"date":"2025-07-09T15:37:16","date_gmt":"2025-07-09T19:37:16","guid":{"rendered":"https:\/\/www.accessforkidscancer.ca\/?post_type=theme-project&p=3802"},"modified":"2025-12-12T13:42:53","modified_gmt":"2025-12-12T18:42:53","slug":"passport-for-care","status":"publish","type":"theme-project","link":"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/passport-for-care\/","title":{"rendered":"Passport for care <\/span>"},"content":{"rendered":"

Les survivants de cancers infantiles au Canada font face \u00e0 des lacunes importantes dans les soins de suivi \u00e0 long terme, en partie en raison de l\u2019absence d\u2019un syst\u00e8me national de production et d\u2019acc\u00e8s aux synth\u00e8ses de traitement et aux plans de soins personnalis\u00e9s. Ces lacunes les exposent \u00e0 un risque plus \u00e9lev\u00e9 d\u2019effets tardifs non g\u00e9r\u00e9s en raison du manque de directives sur la pr\u00e9vention, la d\u00e9tection et la prise en charge de ces effets tardifs en fonction de leur traitement et des recherches les plus r\u00e9centes. Cela peut entra\u00eener une diminution de la sant\u00e9 physique et mentale et de la qualit\u00e9 de vie. Bon nombre des syst\u00e8mes actuels utilis\u00e9s pour fournir de tels renseignements aux survivants du cancer infantile au Canada sont d\u00e9suets et n\u00e9cessitent des mises \u00e0 jour manuelles, ce qui peut prendre du temps, \u00eatre incoh\u00e9rent et non \u00e9volutif. Par cons\u00e9quent, il existe des in\u00e9galit\u00e9s importantes dans l\u2019acc\u00e8s aux plans et aux ressources de soins de survie entre les r\u00e9gions, en particulier parmi les populations marginalis\u00e9es et mal desservies.<\/p>\n

La plateforme Passport for Care (PFC) offre une solution puissante et \u00e9volutive \u00e0 ces d\u00e9fis. D\u00e9velopp\u00e9 par le Baylor College of Medicine et le Texas Children\u2019s Cancer Centre, PFC est une plateforme en ligne s\u00e9curis\u00e9e qui fournit des directives de soins de survie individualis\u00e9es et fond\u00e9es sur des preuves ainsi que des r\u00e9sum\u00e9s de traitement. Elle s\u2019appuie sur les directives de suivi \u00e0 long terme du Children\u2019s Oncology Group et permet aux survivants et aux prestataires de soins d\u2019acc\u00e9der \u00e0 des renseignements essentiels sur la sant\u00e9 de n\u2019importe o\u00f9. \u00c0 ce jour, le PFC a recrut\u00e9 plus de 58\u00a0000 survivants dans 169 cliniques en Am\u00e9rique du Nord.<\/p>\n

En partenariat avec le Pediatric Oncology Group of Ontario (POGO),<\/a> ce projet pilote appuiera la mise en \u0153uvre de la PFC dans les sept programmes de suivi des survivants en Ontario. Le projet jettera un pont entre le registre de l\u2019outil de donn\u00e9es sur le Cancer chez les jeunes au Canada (CCJC) <\/a>et le syst\u00e8me PFC afin d\u2019automatiser la production de plans de soins. En int\u00e9grant les donn\u00e9es d\u00e9mographiques sur le cancer et sur les traitements d\u00e9j\u00e0 recueillies en Ontario dans le PFC, le projet r\u00e9duira le fardeau administratif, am\u00e9liorera l\u2019uniformit\u00e9 des soins et permettra des mises \u00e0 jour en temps r\u00e9el \u00e0 mesure que les directives cliniques \u00e9voluent au fil du temps. Il est important de noter que ce lien avec le CCJC s\u2019appliquera directement aux programmes d\u2019oncologie partout au pays, y compris au Manitoba et en Nouvelle-\u00c9cosse, o\u00f9 le PFC est d\u00e9j\u00e0 adopt\u00e9. Les processus et les voies d\u2019acc\u00e8s cr\u00e9\u00e9s dans le cadre de ce projet pilote seront partag\u00e9s avec d\u2019autres provinces et territoires pendant le projet et \u00e0 l\u2019avenir, dans le but d\u2019\u00eatre \u00e9tendus \u00e0 l\u2019ensemble du Canada.<\/p>\n

PFC soutient la mission d\u2019ACCESS pour des soins \u00e9quitables aux survivants en veillant \u00e0 ce que tous les survivants –\u00a0quels que soient leur situation g\u00e9ographique, leur sexe, leur origine ethnique ou leur statut socio\u00e9conomique\u00a0– puissent recevoir et partager leurs renseignements sur le traitement et les recommandations de suivi. Et surtout, dans un avenir rapproch\u00e9, elle permettra \u00e9galement la recherche sur la survie et l\u2019\u00e9laboration de normes nationales pour la prestation des soins. La mise en \u0153uvre en Ontario servira de mod\u00e8le pour une adoption plus large \u00e0 l\u2019\u00e9chelle du Canada, contribuant \u00e0 combler les lacunes en mati\u00e8re de soins, \u00e0 moderniser les soins de survie et \u00e0 am\u00e9liorer les r\u00e9sultats pour les survivants du cancer infantile \u00e0 l\u2019\u00e9chelle nationale.<\/p>\n

Partenaires financiers :<\/h4>\n

Pediatric Oncology Group of Ontario (POGO).<\/a><\/p>\n","protected":false},"author":6,"featured_media":0,"parent":0,"template":"","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0},"tags":[],"project-category":[178],"class_list":["post-3802","theme-project","type-theme-project","status-publish","hentry","project-category-aspects-psychosociaux-et-survie"],"acf":[],"yoast_head":"\nPassport for care - Access<\/title>\n<meta name=\"description\" content=\"ACCESS is organized into seven research themes from understanding cancer development to its diagnosis, treatment, and survivorship and two cross-cutting groups to support all thematic areas.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/passport-for-care\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Passport for care - 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