{"id":3696,"date":"2025-04-22T16:50:52","date_gmt":"2025-04-22T20:50:52","guid":{"rendered":"https:\/\/www.accessforkidscancer.ca\/?post_type=theme-project&p=3696"},"modified":"2025-12-12T13:42:09","modified_gmt":"2025-12-12T18:42:09","slug":"comprendre-le-paysage-actuel-des-soins-aux-survivants-et-creer-un-reseau-canadien-de-soins-aux-survivants-et-de-defense-des-interets-des-survivants","status":"publish","type":"theme-project","link":"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/comprendre-le-paysage-actuel-des-soins-aux-survivants-et-creer-un-reseau-canadien-de-soins-aux-survivants-et-de-defense-des-interets-des-survivants\/","title":{"rendered":"Comprendre le paysage actuel des soins aux survivants et cr\u00e9er un r\u00e9seau canadien de soins aux survivants et de d\u00e9fense des int\u00e9r\u00eats des survivants <\/span>"},"content":{"rendered":"

Au Canada, plus de 30 000 personnes ont surv\u00e9cu \u00e0 un cancer infantile, et ce nombre devrait augmenter \u00e0 mesure que d\u2019autres enfants gu\u00e9rissent de leur cancer. Bien que les taux de survie soient encourageants, de nombreux survivants sont confront\u00e9s \u00e0 d’importants probl\u00e8mes de sant\u00e9 plus tard dans leur vie en raison des effets \u00e0 long terme du cancer et de ses traitements. Des \u00e9tudes indiquent qu’\u00e0 l’\u00e2ge de 50 ans, la plupart des enfants survivants d’un cancer infantile d\u00e9velopperont au moins un probl\u00e8me de sant\u00e9 chronique, ce qui souligne la n\u00e9cessit\u00e9 de soins personnalis\u00e9s \u00e0 long terme pour aider \u00e0 g\u00e9rer et \u00e0 pr\u00e9venir les complications de sant\u00e9 graves, notamment le risque accru de d\u00e9c\u00e8s. Cependant, les d\u00e9fis socio\u00e9conomiques, les distances g\u00e9ographiques, les p\u00e9nuries de soins de sant\u00e9 et les diff\u00e9rences dans les services de sant\u00e9 au Canada limitent souvent l\u2019acc\u00e8s \u00e9quitable \u00e0 ces soins.<\/p>\n

Ce projet examinera l’\u00e9tat actuel des soins aux enfants survivants en recueillant les points de vue des prestataires de soins de sant\u00e9, des survivants et des proches aidants afin de comprendre ce qui fonctionne bien et o\u00f9 se situent les lacunes du syst\u00e8me.<\/p>\n

Les r\u00e9sultats de cette \u00e9tude appuieront la cr\u00e9ation du R\u00e9seau canadien de soins et de d\u00e9fense des int\u00e9r\u00eats des enfants, adolescents et jeunes adultes survivants du cancer (CAN SCAN). Ce r\u00e9seau s’efforcera de garantir que tous les enfants survivants d’un cancer infantile re\u00e7oivent des soins personnalis\u00e9s, fond\u00e9s sur des donn\u00e9es probantes et de haute qualit\u00e9, quel que soit leur lieu de r\u00e9sidence.<\/p>\n

\u00c0 long terme, CAN SCAN vise \u00e0 faire progresser la recherche dans le domaine des soins aux survivants et \u00e0 favoriser des politiques qui offrent un soutien solide aux enfants survivants du cancer infantile partout au Canada.<\/p>\n

Le r\u00e9seau CAN SCAN vise \u00e0\u00a0:<\/p>\n

    \n
  1. \u00c9valuer les pratiques actuelles en mati\u00e8re de soins aux enfants survivants du cancer infantile afin de d\u00e9terminer les variations et les lacunes, les besoins non combl\u00e9s et les mesures de soutien souhait\u00e9es en examinant les points de vue des prestataires de soins de sant\u00e9, des survivants et des proches aidants dans divers centres d’oncologie p\u00e9diatrique au Canada.<\/li>\n
  2. Mobiliser les prestataires de soins de sant\u00e9, les survivants et les proches aidants afin de d\u00e9velopper le r\u00e9seau, qui se concentrera sur la prestation de soins de survie coh\u00e9rents, centr\u00e9s sur la personne, fond\u00e9s sur des donn\u00e9es probantes et accessibles, ainsi que sur la facilitation et l’acc\u00e9l\u00e9ration de la recherche sur la survie \u00e0 travers le Canada.<\/li>\n<\/ol>\n","protected":false},"author":6,"featured_media":0,"parent":0,"template":"","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0},"tags":[],"project-category":[178],"class_list":["post-3696","theme-project","type-theme-project","status-publish","hentry","project-category-aspects-psychosociaux-et-survie"],"acf":[],"yoast_head":"\nComprendre le paysage actuel des soins aux survivants et cr\u00e9er un r\u00e9seau canadien de soins aux survivants et de d\u00e9fense des int\u00e9r\u00eats des survivants - 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