{"id":3296,"date":"2024-12-11T12:25:31","date_gmt":"2024-12-11T17:25:31","guid":{"rendered":"https:\/\/www.accessforkidscancer.ca\/?post_type=theme-project&#038;p=3296"},"modified":"2025-12-12T13:38:55","modified_gmt":"2025-12-12T18:38:55","slug":"tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique","status":"publish","type":"theme-project","link":"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique\/","title":{"rendered":"Tirer parti des droits de l\u2019homme pour clarifier le risque de <span>discrimination g\u00e9n\u00e9tique <\/span> en oncologie p\u00e9diatrique"},"content":{"rendered":"<p>Les enfants canadiens atteints de cancers rares sont souvent exclus de la recherche en g\u00e9nomique en raison de pr\u00e9occupations injustifi\u00e9es concernant la discrimination g\u00e9n\u00e9tique (DG). La discrimination g\u00e9n\u00e9tique implique qu\u2019un individu ou un groupe soit trait\u00e9 de mani\u00e8re n\u00e9gative, par rapport au reste de la population, sur la base de caract\u00e9ristiques g\u00e9n\u00e9tiques r\u00e9elles ou pr\u00e9sum\u00e9es. Bien que le Parlement canadien ait promulgu\u00e9 la loi sur la non-discrimination g\u00e9n\u00e9tique en 2017 afin de prot\u00e9ger les personnes contre celle-ci, la perception persistante du risque continue d&rsquo;influencer les d\u00e9cisions de nombreux comit\u00e9s d\u2019\u00e9thique. Cela a cr\u00e9\u00e9 des d\u00e9fis importants pour les chercheurs et les parents qui cherchent \u00e0 inclure les enfants dans la recherche g\u00e9nomique sur le cancer, en particulier pour les cancers p\u00e9diatriques rares.<\/p>\n<p>Ces obstacles menacent de limiter la mise \u00e0 disposition de donn\u00e9es cruciales et d\u2019entraver l\u2019\u00e9laboration de protocoles th\u00e9rapeutiques innovants, susceptibles de sauver des vies, pour les enfants pr\u00e9sentant des profils g\u00e9n\u00e9tiques ou pharmacog\u00e9nomiques uniques, ce qui constitue en soi une forme de discrimination g\u00e9n\u00e9tique.<\/p>\n<p>Ce projet adopte une approche fond\u00e9e sur les droits de l\u2019homme pour relever ces d\u00e9fis et vise \u00e0 :<\/p>\n<ul class=\"standard-list\">\n<li style=\"list-style-type: none;\">\n<ul class=\"standard-list\">\n<li>G\u00e9n\u00e9rer des connaissances pr\u00e9cieuses en recueillant les points de vue des parents et des chercheurs sur la discrimination g\u00e9n\u00e9tique dans la recherche p\u00e9diatrique.<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p>Fournir au r\u00e9seau ACCESS des politiques, des donn\u00e9es probantes et des conseils pratiques sur l&rsquo;utilisation des cadres des droits de l\u2019homme pour soutenir les politiques d\u2019\u00e9thique et d\u00e9velopper des clauses de consentement plus inclusives.<\/p>\n<ul class=\"standard-list\">\n<li>Remettre en question les iniquit\u00e9s syst\u00e9miques et les pratiques discriminatoires qui continuent d\u2019entraver la recherche en oncologie p\u00e9diatrique.Ce projet incarne les valeurs de r\u00e9ciprocit\u00e9, d\u2019\u00e9quit\u00e9 et de droits de l\u2019homme, qui sont au c\u0153ur de la mission d\u2019ACCESS. En plaidant pour l\u2019inclusion de tous les enfants dans la recherche sur le cancer, quelles que soient leurs pr\u00e9dispositions g\u00e9n\u00e9tiques, ACCESS vise \u00e0 am\u00e9liorer la diversit\u00e9 des ensembles de donn\u00e9es de recherche. Cette diversit\u00e9 est essentielle pour garantir des r\u00e9sultats de sant\u00e9 \u00e9quitables et favoriser le d\u00e9veloppement de traitements anticanc\u00e9reux personnalis\u00e9s qui r\u00e9pondent aux besoins uniques de tous les patients.\n<p>En r\u00e9duisant les obstacles syst\u00e9miques et en \u00e9liminant le risque per\u00e7u de discrimination g\u00e9n\u00e9tique, cette initiative peut transformer les soins en canc\u00e9rologie p\u00e9diatrique. Elle permet \u00e0 tous les enfants, en particulier ceux atteints de cancers g\u00e9n\u00e9tiques rares, d\u2019acc\u00e9der \u00e0 des recherches et des traitements innovants qui pourraient avoir une incidence profonde sur leur sant\u00e9 et leur survie. En fin de compte, ce projet est une \u00e9tape cruciale vers la cr\u00e9ation d\u2019un avenir plus inclusif et \u00e9quitable pour la recherche et les soins en canc\u00e9rologie p\u00e9diatrique.<\/li>\n<\/ul>\n","protected":false},"author":6,"featured_media":0,"parent":0,"template":"","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0},"tags":[],"project-category":[180],"class_list":["post-3296","theme-project","type-theme-project","status-publish","hentry","project-category-questions-ethiques-juridiques-et-societales-et-science-de-la-mise-en-oeuvre"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.0 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Tirer parti des droits de l\u2019homme pour clarifier le risque de discrimination g\u00e9n\u00e9tique  en oncologie p\u00e9diatrique - Access<\/title>\n<meta name=\"description\" content=\"ACCESS is organized into seven research themes from understanding cancer development to its diagnosis, treatment, and survivorship and two cross-cutting groups to support all thematic areas.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Tirer parti des droits de l\u2019homme pour clarifier le risque de discrimination g\u00e9n\u00e9tique  en oncologie p\u00e9diatrique - Access\" \/>\n<meta property=\"og:description\" content=\"ACCESS is organized into seven research themes from understanding cancer development to its diagnosis, treatment, and survivorship and two cross-cutting groups to support all thematic areas.\" \/>\n<meta property=\"og:url\" content=\"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique\/\" \/>\n<meta property=\"og:site_name\" content=\"Access\" \/>\n<meta property=\"article:modified_time\" content=\"2025-12-12T18:38:55+00:00\" \/>\n<meta property=\"og:image\" content=\"http:\/\/www.accessforkidscancer.ca\/wp-content\/uploads\/2024\/08\/access-site-image.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"675\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@acces_access\" \/>\n<meta name=\"twitter:label1\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique\/\",\"url\":\"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique\/\",\"name\":\"Tirer parti des droits de l\u2019homme pour clarifier le risque de discrimination g\u00e9n\u00e9tique en oncologie p\u00e9diatrique - Access\",\"isPartOf\":{\"@id\":\"https:\/\/www.accessforkidscancer.ca\/fr\/#website\"},\"datePublished\":\"2024-12-11T17:25:31+00:00\",\"dateModified\":\"2025-12-12T18:38:55+00:00\",\"description\":\"ACCESS is organized into seven research themes from understanding cancer development to its diagnosis, treatment, and survivorship and two cross-cutting groups to support all thematic areas.\",\"breadcrumb\":{\"@id\":\"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique\/#breadcrumb\"},\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"http:\/\/www.accessforkidscancer.ca\/fr\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Tirer parti des droits de l\u2019homme pour clarifier le risque de discrimination g\u00e9n\u00e9tique en oncologie p\u00e9diatrique\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.accessforkidscancer.ca\/fr\/#website\",\"url\":\"https:\/\/www.accessforkidscancer.ca\/fr\/\",\"name\":\"ACCESS\",\"description\":\"Advancing Childhood Cancer Experience, Science &amp; Survivorship\",\"publisher\":{\"@id\":\"https:\/\/www.accessforkidscancer.ca\/fr\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.accessforkidscancer.ca\/fr\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.accessforkidscancer.ca\/fr\/#organization\",\"name\":\"ACCESS\",\"url\":\"https:\/\/www.accessforkidscancer.ca\/fr\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/www.accessforkidscancer.ca\/fr\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/www.accessforkidscancer.ca\/wp-content\/uploads\/2024\/08\/access-organization-logo.png\",\"contentUrl\":\"https:\/\/www.accessforkidscancer.ca\/wp-content\/uploads\/2024\/08\/access-organization-logo.png\",\"width\":696,\"height\":696,\"caption\":\"ACCESS\"},\"image\":{\"@id\":\"https:\/\/www.accessforkidscancer.ca\/fr\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/x.com\/acces_access\",\"https:\/\/www.instagram.com\/access_acces\/\",\"https:\/\/www.linkedin.com\/company\/access-acces\/\",\"https:\/\/www.youtube.com\/channel\/UC0SYgen8vfGlXtikQ8xtQ6A\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Tirer parti des droits de l\u2019homme pour clarifier le risque de discrimination g\u00e9n\u00e9tique  en oncologie p\u00e9diatrique - Access","description":"ACCESS is organized into seven research themes from understanding cancer development to its diagnosis, treatment, and survivorship and two cross-cutting groups to support all thematic areas.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique\/","og_locale":"fr_FR","og_type":"article","og_title":"Tirer parti des droits de l\u2019homme pour clarifier le risque de discrimination g\u00e9n\u00e9tique  en oncologie p\u00e9diatrique - Access","og_description":"ACCESS is organized into seven research themes from understanding cancer development to its diagnosis, treatment, and survivorship and two cross-cutting groups to support all thematic areas.","og_url":"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique\/","og_site_name":"Access","article_modified_time":"2025-12-12T18:38:55+00:00","og_image":[{"width":1200,"height":675,"url":"http:\/\/www.accessforkidscancer.ca\/wp-content\/uploads\/2024\/08\/access-site-image.jpg","type":"image\/jpeg"}],"twitter_card":"summary_large_image","twitter_site":"@acces_access","twitter_misc":{"Dur\u00e9e de lecture estim\u00e9e":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique\/","url":"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique\/","name":"Tirer parti des droits de l\u2019homme pour clarifier le risque de discrimination g\u00e9n\u00e9tique en oncologie p\u00e9diatrique - Access","isPartOf":{"@id":"https:\/\/www.accessforkidscancer.ca\/fr\/#website"},"datePublished":"2024-12-11T17:25:31+00:00","dateModified":"2025-12-12T18:38:55+00:00","description":"ACCESS is organized into seven research themes from understanding cancer development to its diagnosis, treatment, and survivorship and two cross-cutting groups to support all thematic areas.","breadcrumb":{"@id":"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique\/#breadcrumb"},"inLanguage":"fr-FR","potentialAction":[{"@type":"ReadAction","target":["http:\/\/www.accessforkidscancer.ca\/fr\/projects\/tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique\/"]}]},{"@type":"BreadcrumbList","@id":"http:\/\/www.accessforkidscancer.ca\/fr\/projects\/tirer-parti-des-droits-de-lhomme-pour-clarifier-le-risque-de-discrimination-genetique-en-oncologie-pediatrique\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"http:\/\/www.accessforkidscancer.ca\/fr\/"},{"@type":"ListItem","position":2,"name":"Tirer parti des droits de l\u2019homme pour clarifier le risque de discrimination g\u00e9n\u00e9tique en oncologie p\u00e9diatrique"}]},{"@type":"WebSite","@id":"https:\/\/www.accessforkidscancer.ca\/fr\/#website","url":"https:\/\/www.accessforkidscancer.ca\/fr\/","name":"ACCESS","description":"Advancing Childhood Cancer Experience, Science &amp; Survivorship","publisher":{"@id":"https:\/\/www.accessforkidscancer.ca\/fr\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.accessforkidscancer.ca\/fr\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"fr-FR"},{"@type":"Organization","@id":"https:\/\/www.accessforkidscancer.ca\/fr\/#organization","name":"ACCESS","url":"https:\/\/www.accessforkidscancer.ca\/fr\/","logo":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.accessforkidscancer.ca\/fr\/#\/schema\/logo\/image\/","url":"https:\/\/www.accessforkidscancer.ca\/wp-content\/uploads\/2024\/08\/access-organization-logo.png","contentUrl":"https:\/\/www.accessforkidscancer.ca\/wp-content\/uploads\/2024\/08\/access-organization-logo.png","width":696,"height":696,"caption":"ACCESS"},"image":{"@id":"https:\/\/www.accessforkidscancer.ca\/fr\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/x.com\/acces_access","https:\/\/www.instagram.com\/access_acces\/","https:\/\/www.linkedin.com\/company\/access-acces\/","https:\/\/www.youtube.com\/channel\/UC0SYgen8vfGlXtikQ8xtQ6A"]}]}},"_links":{"self":[{"href":"http:\/\/www.accessforkidscancer.ca\/fr\/wp-json\/wp\/v2\/theme-project\/3296","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.accessforkidscancer.ca\/fr\/wp-json\/wp\/v2\/theme-project"}],"about":[{"href":"http:\/\/www.accessforkidscancer.ca\/fr\/wp-json\/wp\/v2\/types\/theme-project"}],"author":[{"embeddable":true,"href":"http:\/\/www.accessforkidscancer.ca\/fr\/wp-json\/wp\/v2\/users\/6"}],"wp:attachment":[{"href":"http:\/\/www.accessforkidscancer.ca\/fr\/wp-json\/wp\/v2\/media?parent=3296"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.accessforkidscancer.ca\/fr\/wp-json\/wp\/v2\/tags?post=3296"},{"taxonomy":"project-category","embeddable":true,"href":"http:\/\/www.accessforkidscancer.ca\/fr\/wp-json\/wp\/v2\/project-category?post=3296"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}