{"id":3330,"date":"2024-12-12T13:36:45","date_gmt":"2024-12-12T18:36:45","guid":{"rendered":"https:\/\/www.accessforkidscancer.ca\/?p=3330"},"modified":"2025-03-06T14:24:04","modified_gmt":"2025-03-06T19:24:04","slug":"acces-partage-les-pratiques-exemplaires-en-matiere-de-collecte-de-donnees-sensibles-du-cog","status":"publish","type":"post","link":"http:\/\/www.accessforkidscancer.ca\/fr\/acces-partage-les-pratiques-exemplaires-en-matiere-de-collecte-de-donnees-sensibles-du-cog\/","title":{"rendered":"ACCES partage les pratiques exemplaires en mati\u00e8re de collecte de donn\u00e9es sensibles du COG"},"content":{"rendered":"

En septembre, Stacey Marjerrison et Caroline Wai, codirectrices au comit\u00e9 de justice sociale, d\u2019indig\u00e9nisation et d\u2019inclusion d\u2019ACCESS, ont \u00e9t\u00e9 invit\u00e9es \u00e0 faire une pr\u00e9sentation <\/a>lors de la s\u00e9ance d\u2019\u00e9ducation canadienne \u00e0 la conf\u00e9rence du Children\u2019s Oncology Group<\/a> (COG).<\/p>\n

Leur s\u00e9ance a port\u00e9 sur l\u2019importance de recueillir des donn\u00e9es sensibles<\/a> (en particulier les donn\u00e9es fond\u00e9es sur la race et l\u2019origine ethnique), ainsi que de veiller \u00e0 ce que les chercheurs et le personnel soient correctement form\u00e9s pour recueillir ces renseignements de mani\u00e8re sp\u00e9cifique au contexte et au pays.<\/p>\n

Cette s\u00e9ance de formation a \u00e9t\u00e9 motiv\u00e9e par le soutien d\u2019ACCESS aux patients atteints de cancer p\u00e9diatrique pour la participation du Canada \u00e0 \u00ab AALL2131 : \u00c9tude pilote internationale sur la chimioth\u00e9rapie et l\u2019inhibiteur de la tyrosine kinase gr\u00e2ce au blinatumomab\u2009 \u00bb, en donnant acc\u00e8s au s\u00e9quen\u00e7age de nouvelle g\u00e9n\u00e9ration pour la surveillance de la maladie, une ressource qui n\u2019est pas syst\u00e9matiquement disponible au Canada, mais qui est n\u00e9cessaire pour la participation \u00e0 l\u2019essai. Apr\u00e8s avoir examin\u00e9 les formulaires de collecte de donn\u00e9es de l\u2019essai au cours de l\u2019examen de la proposition d\u2019ACCESS pour soutenir l\u2019essai AALL2131, les options de r\u00e9ponses aux questions fond\u00e9es sur la race et l\u2019origine ethnique ne convenaient pas au contexte canadien.<\/p>\n

En cons\u00e9quence, les membres du comit\u00e9 de justice sociale, d\u2019indig\u00e9nisation et d\u2019inclusion, notamment Stacey et Kathy Brodeur-Robb, membre active du comit\u00e9 de haute direction d\u2019ACCESS et directrice g\u00e9n\u00e9rale du C17, collaborent avec divers chefs de projet du COG pour r\u00e9viser les options de r\u00e9ponse pour les questions fond\u00e9es sur la race et l\u2019origine ethnique destin\u00e9es aux patients dans les centres canadiens, et \u00e9laborent une approche pour les centres canadiens lorsqu\u2019ils sont charg\u00e9s des options de r\u00e9ponses du COG et mandat\u00e9s par le gouvernement f\u00e9d\u00e9ral am\u00e9ricain.<\/p>\n","protected":false},"excerpt":{"rendered":"

En septembre, Stacey Marjerrison et Caroline Wai, codirectrices au comit\u00e9 de justice sociale, d\u2019indig\u00e9nisation et d\u2019inclusion d\u2019ACCESS, ont \u00e9t\u00e9 invit\u00e9es \u00e0 faire une pr\u00e9sentation lors de la s\u00e9ance d\u2019\u00e9ducation canadienne \u00e0 la conf\u00e9rence du Children\u2019s Oncology Group (COG). Leur s\u00e9ance a port\u00e9 sur l\u2019importance de recueillir des donn\u00e9es sensibles (en particulier les donn\u00e9es fond\u00e9es sur… Read more <\/a><\/p>\n","protected":false},"author":6,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[103],"tags":[7,203],"class_list":["post-3330","post","type-post","status-publish","format-standard","hentry","category-nouvelles","tag-in-the-news","tag-blog-fr"],"acf":[],"yoast_head":"\nACCES partage les pratiques exemplaires en mati\u00e8re de collecte de donn\u00e9es sensibles du COG - Access<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.accessforkidscancer.ca\/fr\/acces-partage-les-pratiques-exemplaires-en-matiere-de-collecte-de-donnees-sensibles-du-cog\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ACCES partage les pratiques exemplaires en mati\u00e8re de collecte de donn\u00e9es sensibles du COG - Access\" \/>\n<meta property=\"og:description\" content=\"En septembre, Stacey Marjerrison et Caroline Wai, codirectrices au comit\u00e9 de justice sociale, d\u2019indig\u00e9nisation et d\u2019inclusion d\u2019ACCESS, ont \u00e9t\u00e9 invit\u00e9es \u00e0 faire une pr\u00e9sentation lors de la s\u00e9ance d\u2019\u00e9ducation canadienne \u00e0 la conf\u00e9rence du Children\u2019s Oncology Group (COG). 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