Survivors of childhood cancers across Canada face significant gaps in long-term follow-up care, partly due to the absence of a national system for generating and accessing treatment summaries and personalized care plans. This gap places them at higher risk for unmanaged late effects due to the lack of guidance on prevention, detection and management of these late effects based on their treatment and the latest research. This can lead to reduced physical and mental health and quality of life. Many of the current systems used to provide such information to childhood cancer survivors in Canada are outdated and require manual updates, which can be time-consuming, inconsistent, and not scalable. As a result, there is significant inequity in access to survivorship care plans and resources across regions, especially among marginalized and underserved populations.

The Passport for Care (PFC) platform offers a powerful, scalable solution to these challenges. Developed by Baylor College of Medicine and Texas Children’s Cancer Centre, PFC is a secure, web-based platform that provides individualized, evidence-based survivorship care guidelines and treatment summaries. It draws on the Children’s Oncology Group’s Long-Term Follow-Up Guidelines and allows survivors and providers to access critical health information from any location. To date, the PFC has successfully enrolled over 58,000 survivors across 169 clinics in North America.

In partnership with the Pediatric Oncology Group of Ontario (POGO), this pilot project will support the implementation of PFC across the seven AfterCare survivor programs in Ontario. The project will build a bridge between the Cancer in Young People in Canada Data Tool (CYP-C) registry and the PFC system to automate the generation of care plans. By integrating demographic, cancer and treatment data already collected in Ontario into PFC, the project will reduce administrative burden, enhance care consistency, and enable real-time updates as clinical guidelines evolve over time. Importantly, this link with CYP-C will be directly applicable to oncology programs across the country, including Manitoba and Nova Scotia where PFC is already adopted. Processes and pathways created during this pilot will be shared with other provinces and territories during the project and going forward, with the goal of expansion across Canada.

PFC supports ACCESS’ mission for equitable survivorship care by ensuring that all survivors – regardless of geography, gender, ethnicity, or socioeconomic status – can receive and share their treatment information and follow-up recommendations. And most importantly, in the near future, it will also enable survivorship research and the development of national standards for care delivery. The Ontario implementation will serve as a model for broader adoption across Canada, helping to close care gaps, modernize survivorship care, and improve outcomes for childhood cancer survivors nationwide.

For more information, please contact ACCESS Secretariat.